Join SPARK, an online research partnership involving 50,000 individuals with autism and their families that aims to speed up research and advance understanding of autism.
SPARK (Simons Foundation Powering Autism Research for Knowledge) is an autism research initiative that aims to recruit, engage and retain a community of 50,000 individuals with autism and their family members living in the U.S.
Participation in this cohort will involve contribution of medical and behavioral information, mailing in saliva for genetic analysis, the potential option to have genetic findings related to autism returned, and the option to be recontacted to participate in future research studies. This community of engaged participants will provide researchers with an efficient way to invite individuals to participate in their research.
This research project is centrally coordinated by the Simons Foundation Autism Research Initiative (SFARI) and includes collaboration with 21 university-affiliated research clinics in 18 states across the U.S. SFARI launched a pilot phase of the project in December 2015 with three clinical sites. The remaining clinical sites began recruiting individuals with autism and their families in April 2016.
In addition, numerous national and local autism community organizations across the U.S. are partnering with SFARI to help recruit participants and spread the word about this landmark study.
Researchers will be able to request de-identified genetic and phenotypic data and submit an application to recruit SPARK participants into new autism research studies, beginning in early 2017.
Families who are interested in learning more about SPARK or in participating can visit SPARKforAutism.org.
Baylor College of Medicine (Investigator: Robin Goin-Kochel, Ph.D.)
Boston Children's Hospital (Investigators: Mustafa Sahin, M.D., Ph.D. and Lisa Prock, M.D.)
Center for Autism and the Developing Brain (Investigator: Catherine Lord, Ph.D.)
Children's Hospital of Philadelphia (Investigators: Robert Schultz, Ph.D. and Juhi Pandey, Ph.D.)
Cincinnati Children's Hospital Medical Center (Investigator: Craig Erickson, M.D.)
Emory University (Investigator: Catherine Rice, Ph.D.)
Kennedy Krieger Institute (Investigator: Ericka Wodka, Ph.D.)
Nationwide Children's Hospital (Investigator: Eric Butter, Ph.D.)
Oregon Health and Science University (Investigators: Eric Fombonne, M.D. and Brian O'Roak, Ph.D.)
Rush University Medical Center (Investigators: Latha Soorya, Ph.D. and Cesar Ochoa-Lubinoff, M.D.)
University of California, Davis MIND Institute (Investigators: Leonard Abbeduto, Ph.D. and David Amaral, Ph.D.)
University of California, San Diego (Investigator: Karen Pierce, Ph.D.)
University of California, Los Angeles (Investigator: Amanda Gulsrud, Ph.D.)
University of Colorado, Denver (Investigator: Susan Hepburn, Ph.D.)
University of Miami (Investigator: Melissa Hale, Ph.D.)
University of Minnesota (Investigator: Suma Jacob, M.D., Ph.D.)
University of Mississippi Medical Center (Investigator: Robert Annett, Ph.D.)
University of Missouri, Thompson Center for Autism and Neurodevelopmental Disorders** (Investigator: Stephen Kanne, Ph.D.)
University of North Carolina at Chapel Hill** (Investigators: Joseph Piven, M.D. and Gabriel Dichter, Ph.D.)
University of Washington** (Investigator: Raphael Bernier, Ph.D.)
Vanderbilt University Medical Center (Investigator: Zachary Warren, Ph.D.)
** Pilot sites
Arkansas Autism Resource & Outreach Center (Little Rock, AR)
Autism Science Foundation (New York, NY)
Autism Services & Resources Connecticut (Wallingford, CT)
Autism Society the Heartland (Kansas/Missouri)
Autism Society of North Carolina (Raleigh, NC)
GRASP (New York, NY)
Kentucky Autism Training Center (Louisville, KY)
Mid-Michigan Autism Association (Lansing, MI)
Washington Autism Alliance & Advocacy (Redmond, WA)