The demographic and clinical information of individuals with autism spectrum disorder (ASD) for whom data are currently available in SFARI Base is summarized below.
Demographics
| Characteristic | Children (n = 89,946) |
Independent and dependent adults (n = 16,636) |
|---|---|---|
| Age at enrollment in years, mean (SD) | 8.0 (4.3) | 27.9 (10.5) |
| Sex at birth, n (%) | ||
| - Male | 70,013 (78) | 10,198 (61) |
| - Female | 19,933 (22) | 6,438 (39) |
| Children and adults (n = 71,411) | ||
| Race and ethnicity, n (%) | ||
| - African American | 4,322(6) | |
| - Asian | 1,986 (3) | |
| - Native American/ Native Hawaiian | 485 (1) | |
| - White | 50,140 (70) | |
| - Other | 2,752 (4) | |
| - More than one race | 11,726 (16) | |
| - Hispanic | 13,382 (19) | |
Clinical information
| Characteristic | Children (n = 87,347) |
Dependent adults (n = 8,304) |
|
|---|---|---|---|
| Language level at enrollment, n (%) | |||
| - No words | 12,795 (14) | 833 (10) | |
| - Single words | 12,823 (15) | 726 (9) | |
| - Phrase speech (3 words minimum) | 14,465 (17) | 1,159 (14) | |
| - Longer sentences | 47,264 (54) | 5,586 (67) | |
| Intellectual disability, n (%) | 14,244 (16) | 3,806 (46) | |
| Children (n = 52,424) | |||
| Social Communication Questionnaire (SCQ) | |||
| - Final score, mean (SD) | 22 (7) | ||
| - Meets cut off ≥11, n (%) | 48,211 (92) | ||
| - Meets cut off ≥15, n (%) | 43,348 (83) | ||
| Children and dependent adults (n = 14,137) | |||
| Vineland Adaptive Behavior Scales, Third Edition | |||
| - Adaptive Behavior Composite Score, mean (SD) | 70.9 (15) | ||
| - Adaptive Behavior Composite – Adaptive levels | |||
| • Low, n (%) | 6,098 (43) | ||
| • Moderately low, n (%) | 6,337 (45) | ||
| • Adequate, n (%) | 1,649 (11.7) | ||
| • Moderately high, n (%) | 41 (0.3) | ||
| • High, n (%) | 7 (<0.1) | ||
| IQ* | IQ test records available** (n = 3,143) |
Full-Scale IQ ≤70 (n = 1040) |
Full-Scale IQ 71-84 (n = 482) |
Full-Scale IQ 85-115 (n = 948) |
Full-Scale IQ >115 (n = 174) |
|---|---|---|---|---|---|
| Age at test | |||||
| <1 year – 5 years, n (%) | 1585 | 769 (49) | 212 (13) | 341 (22) | 47 (3) |
| 6 years – 11 years, n (%) | 1000 | 173 (17) | 178 (18) | 413 (41) | 69 (7) |
| 12 years – 17 years, n (%) | 301 | 65 (22) | 55 (18) | 105 (35) | 22 (7) |
| > 18 years, n (%) |
100 | 14 (14) | 19 (19) | 27 (27) | 14 (14) |
| Age at test unknown | 157 | 19 (12) | 18 (12) | 62 (40) | 22 (14) |
* Note: IQ data are available for a subset of adults and children through medical records
**Note: Not all individuals with an IQ test record will have a Full-Scale IQ listed. Percentages will not equal 100.