The demographic and clinical information of individuals with autism spectrum disorder (ASD) for whom data are currently available in SFARI Base is summarized below.
Demographics
| Characteristic | Children (n = 103,036)* |
Independent and dependent adults (20,244)* |
|---|---|---|
| Age at enrollment in years, mean (SD) | 7.8 (4.3) | 28.5 (10.8) |
| Sex at birth, n (%) | ||
| - Male | 80,077 (77.72) | 11,954 (59.05) |
| - Female | 22,959 (22.28) | 8,290 (40.95) |
| * does not include people with unknown ages | ||
| ASD Children and adults (n = 88,356) | ||
| Race and ethnicity, n (%) | ||
| - African American | 6,208 (7.03) | |
| - Asian | 2,725 (3.08) | |
| - Native American/ Native Hawaiian | 667 (0.75) | |
| - White | 64,861 (73.41) | |
| - Other | 4,636 (5.25) | |
| - More than one race | 9,259 (10.48) | |
| - Hispanic | 16,663 (18.86) | |
Clinical information
| Characteristic | Children (n = 99,808) |
Dependent adults (n = 9,351) |
|
|---|---|---|---|
| Language level at enrollment, n (%) | |||
| - No words | 15,307 (15.34) | 960 (10.27) | |
| - Single words | 14,819 (14.85) | 838 (8.96) | |
| - Phrase speech (3 words minimum) | 16,427 (16.46) | 1,326 (14.18) | |
| - Longer sentences | 53,255 (53.36) | 6,227 (66.59) | |
| Intellectual disability, n (%) | 16,152 (16.18) | 4,307 (46.06) | |
| Children (n = 58,877) | |||
| Social Communication Questionnaire (SCQ) | |||
| - Final score, mean (SD) | 22 (7) | ||
| - Meets cut off ≥11, n (%) | 54,865 (93.19) | ||
| - Meets cut off ≥15, n (%) | 49,113 (83.42) | ||
| Children and dependent adults (n = 20,573) | |||
| Vineland Adaptive Behavior Scales, Third Edition | |||
| - Adaptive Behavior Composite Score, mean (SD) | 70.8 (15) | ||
| - Adaptive Behavior Composite – Adaptive levels | |||
| • Low, n (%) | 9,020 (43.84) | ||
| • Moderately low, n (%) | 9,134 (44.40) | ||
| • Adequate, n (%) | 2,344 (11.39) | ||
| • Moderately high, n (%) | 65 (0.32) | ||
| • High, n (%) | 10 (0.05) | ||
| IQ* | IQ test records available** | Full-Scale IQ ≤70 (n = 1,864) |
Full-Scale IQ 71-84 (n = 836) |
Full-Scale IQ 85-115 (n = 1,722) |
Full-Scale IQ >115 (n = 290) |
|---|---|---|---|---|---|
| Age at test | |||||
| <1 year – 5 years, n (%) | 2,736 | 1,376 (50.29) | 378 (13.82) | 596 (21.78) | 81 (2.96) |
| 6 years – 11 years, n (%) | 1,814 | 327 (18.03) | 327 (18.03) | 795 (43.83) | 130 (7.17) |
| 12 years – 17 years, n (%) | 523 | 109 (20.84) | 89 (17.02) | 206 (39.39) | 37 (7.07) |
| > 18 years, n (%) |
169 | 33 (19.53) | 24 (14.20) | 62 (36.69) | 20 (11.83) |
| Age at test unknown | 158 | 19 (12.03) | 18 (11.39) | 63 (39.87) | 22 (13.92) |
* Note: IQ data are available for a subset of adults and children through medical records
**Note: Not all individuals with an IQ test record will have a Full-Scale IQ listed. Percentages will not equal 100.