The demographic and clinical information of individuals with autism spectrum disorder (ASD) for whom data are currently available in SFARI Base is summarized below.
Demographics
| Characteristic | Children (n=50,505) |
Independent and dependent adults (n=8,713) |
|---|---|---|
| Age at enrollment in years, mean (SD) | 8.2 (4.2) | 20.6 (10.5) |
| Sex at birth, n (%) | ||
| - Male | 40,018 (79%) | 5,630 (65%) |
| - Female | 10,487 (21%) | 3,083 (35%) |
| Children and adults (n=25,148) | ||
| Race and ethnicity, n (%) | ||
| - African American | 1,234 (5%) | |
| - Asian | 490 (2%) | |
| - Native American/ Native Hawaiian | 152 (1%) | |
| - White | 19,661 (78%) | |
| - Other | 894 (4%) | |
| - More than one race | 2,603 (10%) | |
| - Hispanic | 4,192 (17%) | |
Clinical information
| Characteristic | Children (n=49,334) |
Dependent adults (n=4,891) |
|---|---|---|
| Language level at enrollment, n (%) | ||
| - No words | 6,825 (14%) | 483 (10%) |
| - Single words | 6,678 (13%) | 446 (9%) |
| - Phrase speech (3 words minimum) | 8,321 (17%) | 686 (14%) |
| - Longer sentences | 27,510 (56%) | 3,276 (67%) |
| Cognitive impairment, n (%) | 8,286 (16%) | 2,241 (46%) |
| Children (n=29,513) | ||
| Social Communication Questionnaire (SCQ) | ||
| - Final score, mean (SD) | 22.2 (7.0) | |
| - Meets cut off >=11, n (%) | 27,851 (94) | |
| - Meets cut off >=15, n (%) | 25,243 (86) | |
| Children and dependent adults (n=22,954) | ||
| Repetitive Behavior Scale – Revised (RBS-R) | ||
| - Final score, mean (SD) | 34.64 (21) | |
| Children (5-15 yrs; n=16,705) | ||
| Developmental Coordination Disorder Questionnaire (DCDQ) | ||
| - Final score, mean (SD) | 37 (12) | |
| - Meets DCD cutoff (%) | 85% | |