The demographic and clinical information of individuals with autism spectrum disorder (ASD) whose data is currently available in SFARI Base is summarized below.
| Characteristic | Children (n=29,276) |
Dependent adults (n=2,911) |
Independent adults (n=2,027) | |
|---|---|---|---|---|
| Demographics | ||||
| Age at enrollment in years, mean (SD) | 8.6 (4.2) | 23.3 (5.7) | 34.4 (12.3) | |
| Race (n=14,416), n (%) | ||||
| - African American | 1,281 (9%) | |||
| - Asian | 703 (5%) | |||
| - Native American/ Native Hawaiian | 577 (4%) | |||
| - White | 12,699 (88%) | |||
| Sex at birth, n (%) | ||||
| - Male | 23,323 (80%) | 2,311 (79%) | 946 (47%) | |
| - Female | 5,953 (20%) | 600 (21%) | 1,081 (53%) | |
| Clinical information1 | ||||
| Age at diagnosis in years, mean (SD) | 4.3 (2.7) | 6.1 (5.4) | 20.7 (16.2) | |
| Ever accessed ASD services, n (%) | 25,273 (86%) | 2,560 (88%) | 1,109 (55%) | |
| Individualized educational plan (IEP) for ASD, n (%) | 23,599 (81%) | 2,652 (91%) | 834 (41%) | |
| Language level at enrollment, n (%) | ||||
| - No words | 3,944 (13%) | 289 (10%) | n/a | |
| - Single words | 3,816 (13%) | 267 (9%) | n/a | |
| - Phrase speech (3 words minimum) | 4,951 (17%) | 438 (15%) | n/a | |
| - Longer sentences | 16,565 (57%) | 1,917 (66%) | n/a | |
| Social Communication Questionnaire (SCQ) (n = 19,658) | ||||
| - Final score, mean (SD) | 22.4 (7.0) | n/a | n/a | |
| - Meets cut off >=11, n (%) | 18,452 (94) | n/a | n/a | |
| - Meets cut off >=15, n (%) | 16,730 (86) | n/a | n/a | |
1Data for the Repetitive Behavior Scale-Revised (RBS-R) and Developmental Coordination Disorder Questionnaire (SCDQ) are also available for a subset of individuals (13,225 and 9,449, respectively).