The demographic and clinical information of individuals with autism spectrum disorder (ASD) for whom data are currently available in SFARI Base is summarized below.
Demographics
| Characteristic | Children (n=77,017) |
Independent and dependent adults (n=13,762) |
|---|---|---|
| Age at enrollment in years, mean (SD) | 8.1 (4.3) | 27.4 (10.3) |
| Sex at birth, n (%) | ||
| - Male | 60,318 (78%) | 8,753 (64%) |
| - Female | 16,699 (22%) | 5,009 (36%) |
| Children and adults (n=55,724) | ||
| Race and ethnicity, n (%) | ||
| - African American | 3,253 (6%) | |
| - Asian | 1,400 (3%) | |
| - Native American/ Native Hawaiian | 373 (<1) | |
| - White | 38,837 (70%) | |
| - Other | 1,962 (3%) | |
| - More than one race | 9,899 (18%) | |
| - Hispanic | 10,503 (19%) | |
Clinical information
| Characteristic | Children (n=75,170) |
Dependent adults (n=7,477) |
|---|---|---|
| Language level at enrollment, n (%) | ||
| - No words | 10,854 (14%) | 745 (10%) |
| - Single words | 10,923 (15%) | 643 (9%) |
| - Phrase speech (3 words minimum) | 12,694 (17%) | 1,022 (14%) |
| - Longer sentences | 40,699 (54%) | 5,067 (68%) |
| Cognitive impairment, n (%) | 12,522 (17%) | 3,397 (45%) |
| Children (n = 44,576) | ||
| Social Communication Questionnaire (SCQ) | ||
| - Final score, mean (SD) | 22 (7) | |
| - Meets cut off >=11, n (%) | 41,204 (92) | |
| - Meets cut off >=15, n (%) | 37,234 (84) | |
| Children and dependent adults (n=33,572) | ||
| Repetitive Behavior Scale – Revised (RBS-R) | ||
| - Final score, mean (SD) | 35 (21) | |
| Children (5-15 yrs; n=24,656) | ||
| Developmental Coordination Disorder Questionnaire (DCDQ) | ||
| - Final score, mean (SD) | 37 (13) | |
| - Meets DCD cutoff (%) | 84% | |