Autism BrainNet

Autism BrainNet, launched in May 2014, is a collaborative network of academic sites that collects, stores and distributes brain tissue for autism research. This resource is intended to support the highest-quality and most rigorous research into the underlying genetic and neuropathological mechanisms that contribute to autism spectrum disorder (ASD) and related neurodevelopmental conditions.

The Simons Foundation and Autism Speaks cofounded Autism BrainNet, creating Foundation Associates, LLC, in 2013, whose only initiative was to support Autism BrainNet. In 2016, SFARI became the sole funder of Autism BrainNet; in 2020, Autism BrainNet officially became a program of SFARI.

David Amaral, a neuroanatomist and research director of the University of California, Davis MIND Institute, is the scientific director of Autism BrainNet. He is responsible for the development of standard operating procedures for all sites, establishing collaborations with patient advocacy and research organizations and other national and international brain banks, and participating in the outreach campaign.

In 2015, Autism BrainNet established a private-public partnership with the NIH NeuroBioBank to develop a unified approach for brain banking for autism spectrum disorders. Many valuable partnerships have also been established with family foundations and research organizations.

Tissue collection and storage is carried out at three regional nodes across the United States:

Boston (Beth Israel Deaconess Medical Center)
Director: Matthew Anderson, M.D., Ph.D.
 
Dallas (UT Southwestern Medical Center)
Director: Carol Tamminga, M.D.
 
Sacramento (University of California, Davis)
Director: Cynthia Schumann, Ph.D.

Autism BrainNet also has two international partnerships:

Oxford, United Kingdom (Oxford Brain Bank at Oxford University)
 
Montreal, Quebec, Canada (Douglas Mental Health University Institute)

To date, the Autism BrainNet collection has received 177 brain donations. These include 78 brains from individuals with a confirmed (56) or suspected (22) diagnosis of ASD, 16 brains from individuals with conditions related to ASD, such as epilepsy or other neurodevelopmental disorders, and 83 brains from individuals with no known psychiatric or neurological conditions.

The tissue and the data previously collected by the Autism Tissue Program (ATP) — a program of Autism Speaks — have been incorporated into Autism BrainNet and managed  and distributed by Autism BrainNet since 2016.

Distribution of the newly acquired tissue collected under the auspices of Autism BrainNet began in early 2019. More information about the tissue distribution and application process is available here.

For additional information, please email info@AutismBrainNet.org.

For immediate help with donations, call 1-877-333-0999. Support is available 24/7.

Go to Autism BrainNet »

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