SPARK Demographic and Clinical Information

The demographic and clinical information of individuals with autism spectrum disorder (ASD) for whom data are currently available in SFARI Base is summarized below.

Demographics

Characteristic Children
(n = 84,005)
Independent and dependent adults
(n = 15,303)
Age at enrollment in years, mean (SD) 8.0 (4.3) 27.7 (10.4)
Sex at birth, n (%)
  -  Male 65,581 (78) 9,417 (62)
  -  Female 18,424 (22) 5,886 (38)
Children and adults (n = 64,361)
Race and ethnicity, n (%)
  -  African American 3,876 (6)
  -  Asian 1,654 (3)
  -  Native American/ Native Hawaiian 440 (1)
  -  White 44,975 (70)
  -  Other 2,387 (3)
  -  More than one race 10,932 (17)
  -  Hispanic 12,127 (19)

 

Clinical information

Characteristic Children
(n = 81,778)
Dependent adults
(n = 7,777)
Language level at enrollment, n (%)
  -  No words 11,889 (14) 786 (10)
  -  Single words 11,969 (15) 684 (9)
  -  Phrase speech (3 words minimum) 13,690 (17) 1,079 (14)
  -  Longer sentences 44,230 (54) 5,228 (68)
Intellectual disability, n (%) 13,497 (17) 3,560 (46)
Children (n = 48,844)
Social Communication Questionnaire (SCQ)
  -  Final score, mean (SD) 22 (7)
  -  Meets cut off ≥11, n (%) 45,060 (92)
  -  Meets cut off ≥15, n (%) 40,611 (83)
Children and dependent adults (n = 11,558)
Vineland Adaptive Behavior Scales, Third Edition
  -  Adaptive Behavior Composite Score, mean (SD) 70.9 (15)
  -  Adaptive Behavior Composite – Adaptive levels
  •  Low, n (%) 4,976 (43)
  •  Moderately low, n (%) 5,198 (45)
  •  Adequate, n (%) 1,336 (11.5)
  •  Moderately high, n (%) 41 (0.4)
  •  High, n (%) 7 (0.1)

 
 
 
 

IQ* IQ test records available**
(n = 2,132)
Full-Scale IQ ≤70
(n = 789)
Full-Scale IQ 71-84
(n = 345)
Full-Scale IQ 85-115
(n = 622)
Full-Scale IQ >115
(n = 111)
Age at test
<1 year – 5 years, n (%) 1187 609 (51) 164 (14) 250 (21) 40 (3)
6 years – 11 years, n (%) 685 122 (18) 132 (19) 284 (41) 50 (7)
12 years – 18 years, n (%) 199 48 (24) 35 (18) 72 (36) 12 (6)
> 18 years,
n (%)
61 10 (16) 14 (23) 16 (26) 9 (15)

* Note: IQ data are available for a subset of adults and children through medical records
**Note: Not all individuals with an IQ test record will have a Full-Scale IQ listed. Percentages will not equal 100.

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