SPARK Demographic and Clinical Information

The demographic and clinical information of individuals with autism spectrum disorder (ASD) for whom data are currently available in SFARI Base is summarized below.

Demographics

Characteristic Children
(n=77,017)
Independent and dependent adults (n=13,762)
Age at enrollment in years, mean (SD) 8.1 (4.3) 27.4 (10.3)
Sex at birth, n (%)
  -  Male 60,318 (78%) 8,753 (64%)
  -  Female 16,699 (22%) 5,009 (36%)
Children and adults (n=55,724)
Race and ethnicity, n (%)
  -  African American 3,253 (6%)
  -  Asian 1,400 (3%)
  -  Native American/ Native Hawaiian 373 (<1)
  -  White 38,837 (70%)
  -  Other 1,962 (3%)
  -  More than one race 9,899 (18%)
  -  Hispanic 10,503 (19%)

 

Clinical information

Characteristic Children
(n=75,170)
Dependent adults (n=7,477)
Language level at enrollment, n (%)
  -  No words 10,854 (14%) 745 (10%)
  -  Single words 10,923 (15%) 643 (9%)
  -  Phrase speech (3 words minimum) 12,694 (17%) 1,022 (14%)
  -  Longer sentences 40,699 (54%) 5,067 (68%)
Cognitive impairment, n (%) 12,522 (17%) 3,397 (45%)
Children (n = 44,576)
Social Communication Questionnaire (SCQ)
  -  Final score, mean (SD) 22 (7)
  -  Meets cut off >=11, n (%) 41,204 (92)
  -  Meets cut off >=15, n (%) 37,234 (84)
Children and dependent adults (n=33,572)
Repetitive Behavior Scale – Revised (RBS-R)
  -  Final score, mean (SD) 35 (21)
Children (5-15 yrs; n=24,656)
Developmental Coordination Disorder Questionnaire (DCDQ)
  -  Final score, mean (SD) 37 (13)
  -  Meets DCD cutoff (%) 84%
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