SPARK Demographic and Clinical Information

The demographic and clinical information of individuals with autism spectrum disorder (ASD) for whom data are currently available in SFARI Base is summarized below.

Demographics

Characteristic Children
(n=50,505)
Independent and dependent adults (n=8,713)
Age at enrollment in years, mean (SD) 8.2 (4.2) 20.6 (10.5)
Sex at birth, n (%)
  -  Male 40,018 (79%) 5,630 (65%)
  -  Female 10,487 (21%) 3,083 (35%)
Children and adults (n=25,148)
Race and ethnicity, n (%)
  -  African American 1,234 (5%)
  -  Asian 490 (2%)
  -  Native American/ Native Hawaiian 152 (1%)
  -  White 19,661 (78%)
  -  Other 894 (4%)
  -  More than one race 2,603 (10%)
  -  Hispanic 4,192 (17%)

 

Clinical information

Characteristic Children
(n=49,334)
Dependent adults (n=4,891)
Language level at enrollment, n (%)
  -  No words 6,825 (14%) 483 (10%)
  -  Single words 6,678 (13%) 446 (9%)
  -  Phrase speech (3 words minimum) 8,321 (17%) 686 (14%)
  -  Longer sentences 27,510 (56%) 3,276 (67%)
Cognitive impairment, n (%) 8,286 (16%) 2,241 (46%)
Children (n=29,513)
Social Communication Questionnaire (SCQ)
  -  Final score, mean (SD) 22.2 (7.0)
  -  Meets cut off >=11, n (%) 27,851 (94)
  -  Meets cut off >=15, n (%) 25,243 (86)
Children and dependent adults (n=22,954)
Repetitive Behavior Scale – Revised (RBS-R)
  -  Final score, mean (SD) 34.64 (21)
Children (5-15 yrs; n=16,705)
Developmental Coordination Disorder Questionnaire (DCDQ)
  -  Final score, mean (SD) 37 (12)
  -  Meets DCD cutoff (%) 85%
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