The demographic and clinical information of individuals with autism spectrum disorder (ASD) for whom data are currently available in SFARI Base is summarized below.
Demographics
| Characteristic | Children (n = 109,161)* |
Independent and dependent adults (22,811)* |
|---|---|---|
| Age at enrollment in years, mean (SD) | 7.8 (4.3) | 28.7 (10.7) |
| Sex at birth, n (%) | ||
| - Male | 84,498 (77.41) | 12,647 (55.44) |
| - Female | 24,663 (22.59) | 10,164 (44.56) |
| * does not include people with unknown ages | ||
| ASD Children and adults (n = 96,715) | ||
| Race and ethnicity, n (%) | ||
| - African American | 6,872 (7.11) | |
| - Asian | 2,970 (3.07) | |
| - Native American/ Native Hawaiian | 738 (0.76) | |
| - White | 70,805 (73.21) | |
| - Other | 5,095 (5.27) | |
| - More than one race | 10,235 (10.58) | |
| - Hispanic | 18,205 (18.82) | |
Clinical information
| Characteristic | Children (n = 99,808) |
Dependent adults (n = 105,687) |
|
|---|---|---|---|
| Language level at enrollment, n (%) | |||
| - No words | 16,405 (15.52) | 995 (10.27) | |
| - Single words | 15,784 (14.93) | 867 (8.95) | |
| - Phrase speech (3 words minimum) | 17,409 (16.47) | 1,369 (14.13) | |
| - Complex sentences | 56,089 (53.07) | 6,459 (66.66) | |
| Intellectual disability, n (%) | 16,976 (15.65) | 4,466 (44.88) | |
| Children (n = 62,120) | |||
| Social Communication Questionnaire (SCQ) | |||
| - Final score, mean (SD) | 22 (7) | ||
| - Meets cut off ≥11, n (%) | 57,801 (93.05) | ||
| - Meets cut off ≥15, n (%) | 51,698 (83.22) | ||
| Children and dependent adults (n = 23,157) | |||
| Vineland Adaptive Behavior Scales, Third Edition | |||
| - Adaptive Behavior Composite Score, mean (SD) | 70.7 (15) | ||
| - Adaptive Behavior Composite – Adaptive levels | |||
| • Low, n (%) | 10,185 (43.98) | ||
| • Moderately low, n (%) | 10,226 (44.16) | ||
| • Adequate, n (%) | 2,655 (11.47) | ||
| • Moderately high, n (%) | 79 (0.34) | ||
| • High, n (%) | 12 (0.05) | ||
| IQ* | IQ test records available** | Full-Scale IQ ≤70 (n = 2,041) |
Full-Scale IQ 71-84 (n = 922) |
Full-Scale IQ 85-115 (n = 1,902) |
Full-Scale IQ >115 (n = 322) |
|---|---|---|---|---|---|
| Age at test | |||||
| <1 year – 5 years, n (%) | 3,000 | 1,488 (49.60) | 408 (13.60) | 670 (22.33) | 90 (3.00) |
| 6 years – 11 years, n (%) | 2,047 | 377 (18.42) | 378 (18.47) | 881 (43.04) | 147 (7.18) |
| 12 years – 17 years, n (%) | 572 | 122 (21.33) | 94 (16.43) | 224 (39.16) | 43 (7.52) |
| > 18 years, n (%) |
174 | 35 (20.11) | 24 (13.79) | 64 (36.78) | 20 (11.49) |
| Age at test unknown | 158 | 19 (12.03) | 18 (11.39) | 63 (39.87) | 22 (13.92) |
* Note: IQ data are available for a subset of adults and children through medical records
**Note: Not all individuals with an IQ test record will have a Full-Scale IQ listed. Percentages will not equal 100.