SPARK Demographic and Clinical Information

The demographic and clinical information of individuals with autism spectrum disorder (ASD) whose data is currently available in SFARI Base is summarized below.

Characteristic Children
(n=29,276)
Dependent adults
(n=2,911)
Independent adults (n=2,027)
Demographics
Age at enrollment in years, mean (SD) 8.6 (4.2) 23.3 (5.7) 34.4 (12.3)
Race (n=14,416), n (%)
 -  African American 1,281 (9%)
 -  Asian 703 (5%)
 -  Native American/ Native Hawaiian 577 (4%)
 -  White 12,699 (88%)
Sex at birth, n (%)
 -  Male 23,323 (80%) 2,311 (79%) 946 (47%)
 -  Female 5,953 (20%) 600 (21%) 1,081 (53%)
Clinical information1
Age at diagnosis in years, mean (SD) 4.3 (2.7) 6.1 (5.4) 20.7 (16.2)
Ever accessed ASD services, n (%) 25,273 (86%) 2,560 (88%) 1,109 (55%)
Individualized educational plan (IEP) for ASD, n (%) 23,599 (81%) 2,652 (91%) 834 (41%)
Language level at enrollment, n (%)
 -  No words 3,944 (13%) 289 (10%) n/a
 -  Single words 3,816 (13%) 267 (9%) n/a
 -  Phrase speech (3 words minimum) 4,951 (17%) 438 (15%) n/a
 -  Longer sentences 16,565 (57%) 1,917 (66%) n/a
Social Communication Questionnaire (SCQ) (n = 19,658)
 -  Final score, mean (SD) 22.4 (7.0) n/a n/a
 -  Meets cut off >=11, n (%) 18,452 (94) n/a n/a
 -  Meets cut off >=15, n (%) 16,730 (86) n/a n/a

1Data for the Repetitive Behavior Scale-Revised (RBS-R) and Developmental Coordination Disorder Questionnaire (SCDQ) are also available for a subset of individuals (13,225 and 9,449, respectively).

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