The Simons Foundation Autism Research Initiative (SFARI) reminds all approved Principal Investigators that they must not share access or distribute data sets and/or biospecimens obtained from the SFARI Simons Collection to any other researchers without prior SFARI approval. Limitations imposed on SFARI by research participant consents restrict the use of data sets and/or biospecimens to:
- Be used exclusively for the advancement of biomedical science and in a manner consistent with the goals and policies of the Foundation.
- The requesting Principal Investigator, who shall be responsible for retaining control over all data sets and/or biospecimens obtained from the SFARI Simons Collection and shall not provide, resell, share or otherwise distribute them (free of charge or otherwise), directly or indirectly, to any other person other than the Principal Investigator, as detailed in the Researcher Distribution Agreement.
Principal Investigators shall be responsible for communicating immediately with a SFARI Research Liaison if they become aware of a breach in policy. If a researcher breaches this policy, he/she may have their access to biospecimens revoked. A breach of consent shall be also be filed with the appropriate IRB.
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